Tuesday, July 3, 2012

Meet Amelia

     This is my beautiful daughter Amelia. She is our third daughter and a cute little bundle of personality. She is now 4.5 months old, but I started to notice something wasn't quite right pretty much from day one. She was perfectly healthy, but I kept noticing that one eye seemed a little off from the other. I couldn't quite place what the problem was exactly, I just knew it didn't seem symmetrical. My husband thought it would correct itself and it was just because she was a newborn. I thought that may be the case as well so I let it go for awhile. The older she got, the more I started to notice it. I also noticed that one ear was lower and off to the side more than the other. She also favored sleeping on only the right side of her head.
    We went to the doctor and she said that Amelia had Torticollis. She also said the eye was swollen from constantly laying on the one side. I originally thought this as well and observed her sleeping for the next couple of days. I noticed she could move her head to the other side with out a problem she just didn't want to. I also noticed at that point that her head was shaped oddly. We went back to the doctor and she diagnosed her with Plagiocephaly.
    We were right in the middle of moving from California to Arizona when all this happened. This also meant that we had to wait for new insurance to kick in. I was terrified after reading about Plagiocephaly that her condition would become permanent, so I did everything I could to keep her off her head. Her head shape started to look better, but her ears were still pretty off. When we got insurance we took her to her new doctor and she confirmed the diagnosis and recommend we take her to Cranial Technologies for an evaluation. I set up an appointment with them out of their California office. The only locations are almost 200 miles away and their is nothing in the general vicinity to accommodate her needs. Major bummer!

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